One week to build up strength

     After four weeks spent mostly in bed, I am suddenly feeling better -- feeling like being downstairs, looking forward to going someplace -- anyplace -- other than the hospital. Relieved that the advice the infusion nurse gave me (blame discomfort on the medication, not on the cancer) seems to be apt: the side effects of the last chemo I had, on Dec. 26, apparently are dissipating. It's not the fentanyl that's had me down, or even the tumor. Now that I have causality, I can plan around it and not worry (so much) about it. 

     What's different is hard to quantify. I am still terribly weak, from being in bed and not eating well. (Lost a couple more pounds in the last four weeks, which made Dr. J frown.) But my stomach does not feel knotted up and I can eat two scrambled eggs without a terrible gurgling, full sensation. Yesterday I ate breakfast; took a shower without feeling lightheaded; tidied up the front parlor; got dressed (including earrings and lipstick); hosted my lifelong friend KK and her sweetheart, who stopped through town on their way somewhere else; ate some salmon M had smoked; played with A; ate a normal amount of salad; had ice cream for dessert; watched a movie with M; and didn't go back upstairs until a reasonable adult time (11:00). In other words, if you discount the two-hour nap after breakfast, pretty fucking close to normal. 

     Classes start a week from tomorrow. My goals are to write fiction every day, and to build up my strength enough to get my ass to campus, park, walk, and be in class from 5:15 - 9:40 (two classes back-to-back on Mondays). 

     Me me me. Yawn. M just walked in sans A (who went to lunch at a friend's house) and with the Sunday NYT. There's a nice afternoon unfolding in front of us, and perhaps I'll have something to say about a subject besides my own damn self in the next post. 

     Here's to 2009.

Up and not so running

     M and A dragged our Christmas tree home a week ago. M wrestled it into the stand and stood it upright without my help. (A relative term; typically my help comprises holding the trunk with two fingers while he squirms on the floor, tightening and loosening screws, asking, "Is is straight now?") He strung it with big fat colored lights. Two nights later he unstrung the colored lights, which were shorting out periodically, and replaced them with those tiny white lights that everyone decided during the Reagan Eighties were somehow less tacky than the lights of our youth. That's when tinsel took a mortal hit, too, I think.

     Now, we have a beautiful tree with lights but no ornaments. Strangely, A hasn't been begging to decorate the tree. She's excited about Christmas, but she's not nutzo like Hopie and I were at her age. On the other hand, she's always been able to entertain herself, to be satisfied, with what's right in front of her. Can't find both shoes she wants to wear? No worries, these others will do nicely, and there are two. That's just how she rolls. Nice little presence in our house. 

     I, like the tree, am up but not exactly good to go. Treatment yesterday took everything out of me; we got home at 1:30, I went to sleep and woke up six hours later. Last night I slept 12 hours. I still feel groggy, and there is so much I want to do for Christmas. A should have presents gathering under the tree (right now there are Amazon boxes and, I believe, a screwdriver or two). Hopie and I should be conspiring about brunch Christmas morning -- bagels and lox? Something sweet? Who will provide the champagne for mimosas? Or should we get M to mix a batch of bloodys? Which night would Hopie like to bring over some A gifts, so she and Andy don't have to schlepp everything Christmas morning? So far, none of that. I haven't even hung the excellent, sparkly, and very likely magical kissing ball A made in pre-K last year. It really is stunning. Glitter.

     M's parents are driving to Atlanta to celebrate their new grandson's first Christmas. He will be almost five months old. He is an excellent baby. M and A are at his folks' house right now, about a half-hour down the road, dropping off goodies for the Atlanta contingent. What's weird about that: I had nothing, but nothing to do with those presents. Not even the wrapping. I don't know what M is sending beyond a little something he carved from wood and painted. (M is a talented artist, imaginative and patient.) I ordered a treat for the baby off the Interwebs and had it sent directly. That's it. I feel like I've dropped off the face of Christmastown. Makes me sad.

     Tonight we have our annual secret gift exchange with friends. (I was unsure I'd be up for it, until I went to workshop on Wednesday night, which was at the professor's house and featured chili and lots of wine. It didn't deplete me at all, so I have confidence about tonight.) I'm almost completely unprepared, and have relied on M for help selecting and acquiring the thing. It's 1:30 Saturday afternoon, the babysitter comes at 7:00, and there's still one more element to the present I have to get done before wrapping. Maybe a nap first. 

     So, in summary: Sloggy sleep, white lights, lots to do, lots foregone, lovely children, just a bit more sleep, please.

     Doesn't seem so different from most Christmases, now that I think of it.

Novel crank

     Whew! Third and final submission for the semester to novel workshop: check! This thing is coming slowly for me. As much as I loved poetry workshop this fall, I should have followed the advice of my novel workshop instructor and committed single-mindedly to prose. It was too easy to take a break from the long form (which intimidated me to begin with) and dash off a poem or two instead. And polish. And revise. 

     Once I get cranking on the story, I love it -- but there's definitely a learning curve when I put it away for more than a couple of days. I reckon it is all about momentum at this point.

     Something else that's not working the way I'd envisioned it is this blog. The purpose was to blather about illness here so I could keep it out of my fiction, but you write what you know, I guess. Small wonder there's not one but two characters in the novel with life-threatening conditions, struggling to work out all the dynamics and deal with the pressures I'm slogging through in real life. Bleh. Maybe in revision one of them will turn into an organ grinder whose main conflict is lack of monkey.

     M fussed at me this morning for following my own judgment rather than doctor's orders, and saving some antibiotics that were prescribed a couple of weeks ago for now, when I actually do have a mild sore throat and fever. My thinking was that I didn't need them before, and good thing I have them now. M's argument was that the doctor said I needed them and I should have finished them as directed. He doesn't need an even sicker me to take care of. I understand that, but I feel it's my job to monitor my health, not his. If the tables were turned, we'd each be making the other's argument.

     A went off to school this morning proudly sporting brand new shiny black patent Mary Janes. The child could not be more fabulous.

My audience of one, or, "Brains can't save her now!"

     It's quite true that being smart, or generous or funny or happy, or pretty or wealthy, or devout or even centered and mature, holds no sway over cancer. Yes, studies show (apparently) that educated people with health insurance have better prognoses than underprivileged people; it sucks five ways from Sunday to be on the wrong side of middle class in this country. But I'm talking about the individual, cellular level here. Cancer doesn't care how well I did on my SATs.

     Which brings me around to that "audience of one" I've been thinking about for a week, since an anonymous commenter posted the provocative idea in response to my extended whine on writing. The connection whacked me in the head by way of a quiet email late last night, barely three days after I'd sent a small batch of poems to the Virginia Quarterly Review: rejection, of course, and not even the typical "though your work shows obvious merit" line they usually give me when they decline my fictions after stewing on them for over a hundred days; I heard the unmistakable sound of the door slam and the lock click on this one. My head spun.

     I like smart; I strive for smart. I want to be in that club so damn bad. Among the literary publications and magazines I submit to, I consider several to be whip-smart: VQR, Paris Review, The Atlantic, Harper's, Boston Review. Certainly there are others I'd love to get into -- Missouri Review, AGNI, Tin House, Ploughshares, actually there are lots of them -- but I am drawn to the first set due to what I perceive as their intellectual prowess. They are on the pulse, taking on the giant issues of the day, publishing thoughtful essays and critiques alongside accomplished fiction and poetry. Politics is more than a fictive theme in these publications; it's a driving force. They have that big-picture perspective that tags them as brainiacs, the ability not only to see societal patterns in individual acts, but to embrace existing in this most unforgiving space, willfully (rather than haphazardly) presenting a cumulative commentary on the world as it turns in the moment. They live outside their own precious heads.

     I suppose it would surprise no one to learn that my parents put a premium on smarts. Or that they were not just politically involved, but prescient, moving their young family from their hometown of Montgomery to Washington, DC in 1965, eschewing the mindset they'd grown up with and making a difficult, determined reach for change, for the future, years before it was even remotely acceptable. They had vision. The acted on it.

     I often wonder, if I'd been born in the Depression-era Deep South and come of age under Jim Crow, if I'd have had the vision and the will my parents demonstrated. I do not believe I would.

     My mother worked on Capitol Hill for Sen. Mike Mansfield's Democratic Policy Committee, got a law degree, and worked at Treasury. A young up-and-coming Washingtonian, everyone said, smart as a whip and ready to do great things. Her trajectory was abruptly reversed by illness; in 1983, she died of cancer. She was 48.

     My father ran an association on alcohol and drug policy, and became an international expert on the failure of prohibition, and an advocate for the disease theory of addiction. He was endlessly gracious and had impeccable manners, but privately, he made it understood that he did not suffer fools gladly. By the end of his life (he died in 2004), he refused to suffer them at all -- it seemed he had little tolerance for most people. I understand that to be a classic pattern of aging, where one becomes more oneself as the years go by.

     Anyway, hard acts to follow. 

     I've spent my life trying to live up to the level of smartitude so clearly valued in my family, and feeling out of my league. Trying to compensate, I stacked up achievements instead, as a kind of proof that I was worthy, that there were brains between those ears, even if, during family trips or holidays, I was the clown. I went to an academically middling but artistically competitive university and won every acting award they gave out. Afterwards, I wormed my way in the back door of a TV newsroom and got hired as a reporter, and scarcely three months later, was promoted to anchor and producer. (I was 22 years old.) Lookit, see me, interviewing the people who make the world go round? Telling other people what's news? I would repeat this pattern twice more, in advertising (copywriter to associate creative director within a year), and in the cradle of intellectualism itself, the University (adjunct to fulltime instructor, even lacking an advanced degree, in one year). 

     All the while, writing. And now, I'm doing what my own mother did, though in a manner decidedly less intellectually robust than law school/Capitol Hill/family: I'm back in school, for an MFA.

     It's pretty clear to me that I'm trying to get my father's ear. There's no way he'd be interested in this novel, but the act of completing a novel itself would impress him. My mother loved fiction and poetry, but I didn't get a chance to know her as a grownup, and so any speculation about what kind of novel she might admire feels fruitless. 

     The motivation behind my achievements thus far has been to prove that I'm smart. I choose smart friends, I married a smart man. I genuinely like smart. Maybe I can write a smart book. The lessons my parents instilled in me help make living artful and worthwhile, but they do not help with simple survival. Where can I go to learn how to fuck with cancer's plan?

     I've heard or read more than one writer say, in effect, that they write in order to save their lives -- in order to live. I like that, but I don't think it works that way. Cancer won't care when VQR comes calling. On the other hand, this weekend I recklessly submitted some stories (and a batch of poems) to a bunch of journals, many which are notoriously slow in responding. Six months is a lifetime; who knows if I'll be in any shape to accept an offer of publication? A small act of hope.

     Meantime, I'm still trying to envision my audience of one. 

What were we thinking?

     Off to Week Three of the new chemo regimen, and hoping my blood counts aren't too shot to get the medicine. M is taking me to the infusion center, and my friend Amy will meet us there and hang out with me so M can run a thousand errands. His brother is flying in this afternoon to surprise their father for his seventieth birthday, and for the sake of ease, we somehow planned to have dinner here tonight. M has made a birthday cake and hired Chef Bill to whip up a fabulous dinner... but M still has to run to the airport to pick up his brother, pick up the food, get the table set, pick up A from school, etc. How is this easier than going to a restaurant? Obviously we were out of our minds when we planned this. Shit, we still haven't entirely cleared the table of Thanksgiving linens and assorted utensils. Brother is spending the night with us tomorrow night, which calls for some attention to the guest room. I bet he'd like sheets.

     My aim, if I'm feeling up to it, is to help M as much as I can, and possibly do some thinking on that "ideal reader" issue a commenter raised a couple of days ago, and post here later this afternoon. 

     Or maybe a nap.