I write, therefore I am.
Anyway, the process, coupled with the hyper-awareness of turmoil, both global and domestic, has really set my reptilian brain to percolating. The upshot is great confusion, an erosion of faith, perhaps, but at the very least there is a paring of what I believe not to be true. So, that's something.
Regarding cancer: I have no faith in the theory that attitude has any bearing whatsoever on the biology of the disease, either its progression or its retreat. Attitude is inauthentic, by definition, largely because of the faith our culture has placed in this theory: there is enormous pressure for the patient to act heroically by minimizing ill effects (smiling through it); to keep the schedule; to appear brave. Show me a cancer fighter on the teevee, I'll show you a martyr. We so hope that acting tough will result in victory, we are unwilling to acknowledge that (what I suspect is) a great majority of cancer patients privately fall the fuck apart. The upside of this clarity, I suppose, is my faith in people's capacity to do what they have to do. Note that this is not the same thing as toughing it out, powering through, taking one's lumps. Rage is a coping mechanism; depression, a protective device. I have no use for bravery, or even goodness. Consider all the brave people with stellar attitudes who've succumbed to a "long battle with cancer," and the opposite -- those pitifuls with piss-poor manners who scream and kick and cry and endure many remissions, or perhaps are cured. Cancer is not who I am; my response to it is not representative of my character. Cancer is nothing more than a piece of my struggle, one of many. And everybody's got somethin'.
I have faith in healing efforts as they extend toward me from an authentic heart. That is to say, I have faith in the love of my doctors, my family, my friends, my colleagues. I have come to believe it doesn't much matter what they do, as long as they're accepting of my visceral responses. As M and I tell A, it's okay to feel sad/mad/bored. I have faith in my personal biology, and have become (I think) better at following my body's signals and needs. But really, it's like my hair caught fire twelve years ago and I'm still hopping around beating my head with a wet towel. There's nothing deliberate about my response to this disease. It's al-Qaeda in the caves, elusive and enigmatic, indistinct, and multiplying. What can you do, strategically, tactically, but cross your fingers and hope?
What about maturity? The ability to control one's emotional response, to temper, to decide? A raving bunch of shit, in my experience. Yet we're expected to be able to control, or at least limit, the big scary emotions that accompany any misfortune -- grief, rage, sadness, we're supposed to move through them by stages; to get over them. (Thanks for that, Kubler-Ross.)
I have no faith that I can control my fear; I have great hope that I can come to peace. For now, I'm relying on love and nerve pills.
Note to self: faith in books, next time.
This post is a bald, rambling mess. Feh. It's as close to true as I can make it tonight.
2 comments:
That was a great post.
"it's like my hair caught fire twelve years ago and I'm still hopping around beating my head with a wet towel."
That line instantly became one of my all-time favorites of yours.
I always knew you were a fighter but I could never put the right picture or metaphor to it. In history there were many great philosophers of battle (and they usually saw no difference between the internal and external battle). I speak here of the stoic warrior philosophers, or for that matter the zen-buddhist samurai. Much as I might wish to be like them, I don't think I ever could. I need a plan, a mission, and a meaning, I think. If it were me, I would see it all as part of the grand plan of the creator and try to figure out what I was supposed to do.
But I guess, like with writing, you know it when you write it down. Then again, that's only when you *think* you know it. You really only know it when you reread, later, and see if it still rings the same bell.
Anon, that's my experience of writing, too -- I know it when I reread it later. For some reason (maybe because it never really left me, even through 7 years of remission), I don't get any perspective on illness. I keep doing the same things, having the same reactions, the same internal struggles... but I can't blame myself for that; I'm dong what I have to do to survive the moment, and because it's fallacious to reason that I can change the outcome by changing my attitude. This shit just doesn't work like that. And it's one of the greatest pressures endured by sick people in this country -- the idea that you can smile your way to health, and if you bite it anyway, well, at least you went out "bravely, with dignity" -- i.e. gently, accepting, resigned, without making too big a mess, without making other people too terribly uncomfortable. Fuck that. It's not true.
I'm with Dylan Thomas on this one.
You know all this about me. It feels good to write it down.
Thanks for your note.
E.
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