Monday, November 24, 2008

Steroid psychosis

     What a week. I had chemo on Friday morning, then gave a reading Friday evening. The reading went exceptionally well -- I felt calm, comfortable, and the story was well-received by the 75 or so people in the audience. Very energizing. Then I came home and slept, hard. M's parents came by yesterday and, unlike the immediate aftermath of most Topo Gigio treatments, I was perky enough to hang out with them for a couple of hours. That's major progress.
     You'd think the fact that I'm getting a slightly lower dose of chemo than before (which actually adds up to a higher amount over three weeks) is what made the difference, but you'd be wrong! We also ditched the Decadron, a steroid that helps quell nausea and, incidentally, didn't anyone tell you this?, just a little tip, can bring on the batshit crazies in some huge percentage of patients. When I told Dr. J a couple of weeks ago that for three days after chemo, the world seemed about to end, he immediately suggested we drop the Decadron. But it was the infusion nurse who snapped it into perspective for me and M on Friday: "Steroid psychosis! We see it all the time with Decadron. Google it when you get home." 
     So. While I'm thrilled to know that the source of my... how you say... emotional delicacy was a pre-med, and apparently a non-essential one at that (no horking at all without it, phew!), I find myself in a familiar state of dismay over having lost all that time to crying; over freaking out my family; over assuming, as I often do, that nothing can be done and I must take my lumps. A long-term cumulative effect of sliding health, trauma and chemo -- and I've had "a helluva lot," as Dr. J never fails to remind me -- is fuzzy memory. So I don't recall being out of my mind with Decadron when I was on Gemzar or cisplatin (or whatever it was) last year. M does remember it; when he googled "steroid psychosis" this morning, he said it all looks very familiar, and I am not alone.
     One of my favorite shows on the teevee is "House," as I've mentioned before. Part of what I love about it, aside from the consistently complex characters, is that the medical cases always present the physician's paradox: how to save the patient without killing the patient? I guess the fish an oncologist is frying really are that big; the smaller ones (what's a little psychosis in the grand scheme of things?) don't seem worth mentioning.
     The week overall: a net gain.

3 comments:

Anonymous said...

At least you reconized you were in psychosis. I have a neighbor who has been battling cancer for 5 years now. She is recently on steroids and has gone ape shit crazy. She has spent a fortune and is still spending her money up all hours of the night, being very irrational and thinks everyone else is crazy bu her. I really care about her and donty know what to do. Her family doesnt want the headache and so she is driving all of we neighbors crazy. If you could offer advice it would be appreciated.

Anonymous said...

Yes I too hvae experience with steriod induced psycosis. My husband went nuts in the hospital in NYC. Left in an aggressive manner and was missing for a day. He has been on steriods many times before it always made him feel jumpy but this time it sent him over the edge. He's not quite back yet and it's been almost 2 weeks off of the decadron.

Anonymous said...

I just found your blog after searching for others going through steroid-incuded mental adventures. I was given 40mg/day of Prednisone after a particularly nasty sinus infection (I had asked the doctor for something to ‘prop me up’ so I could get back to work sooner).

I think I now have much greater insight into the horror that is mental illness. I seem to be recovering now, but it has been a very horrible experience. This has been one wall that I could have cheerfully gone my whole life without peering over.

 

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